Children’s National Health System is now part of a growing Duchenne care network, becoming the newest member of the Parent Project Muscular Dystrophy’s (PPMD) Certified Duchenne Care Program.
The certification process to become a Certified Duchenne Care Center (CDCC) was grounded in the idea that comprehensive Duchenne care and services should be available and accessible to as many families as possible. By joining the network of PPMD Certified Duchenne Care Centers and standardizing care, Children’s National’s Neuromuscular Medicine Program is also improving Duchenne research and clinical trials by decreasing variability in care and increasing the quality of clinical trial outcome measures. This results in accelerating the time it takes therapies to reach the patients who need them.
By allowing neuromuscular patients of all diagnoses access to the comprehensive teams of sub-specialists serving the Duchenne population, Children’s National and other PPMD Certified Duchenne Care Centers will improve the care of all patients with neuromuscular diagnoses.